Tag Archives: cerebral palsy

Fundraiser Nets $1 Million for Cerebral Palsy Non-Profit

The Cerebral Palsy International Research Foundation (CPIRF) held a fundraiser in New York City that raised $1 million dollars – $400,000 more than the organization hoped for. The money raised at the event, which took place at the Pierre Hotel’s ballroom, will be used to further CPIRF’s mission, which includes: Funding research for cures and treatment options for people with cerebral palsy Advocating federal government officials to fund more cerebral palsy research Educating medical students on best practices for treating children and adults with cerebral palsy Paul Volcker, chairman of the foundation, received an award from his son James, who has cerebral palsy. “I want to thank my father for helping me to understand that cerebral palsy is just one aspect of my life,” James said at the event. We are excited to hear that the foundation met its goals (and then some) with this fundraiser. We hope that more…
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Suspecting Abuse, Court Demands Uncensored Documents from Disability Centers

There are close to 1,700 people with cerebral palsy and other disabilities living in the California Department of Public Health’s institutions for the developmentally disabled. For years, any record of abuse or neglect was hidden from public eyes. The Center for Investigative Reporting (CIR) sued the department for withholding these documents. The department released highly redacted versions of the citations, and now a California state court is ordering the release of the full, uncensored versions. The defense for the institutions argued that the redacting was necessary because the patients’ medical information is confidential. The judge disagreed, saying that blacking out the information defeats the purpose of releasing the documents. “Under (the department’s) construction, redacting factual information from the citation, the public knows a violation has occurred, but cannot ascertain how the violation occurred, whether it has been corrected, or whether it is likely to be repeated,” Judge Timothy Frawley wrote….
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Children with Cerebral Palsy Face Increased Flu Risk

A joint study between the Centers for Disease Control (CDC) and the American Academy of Pediatrics found that children with cerebral palsy, epilepsy and other neurological disorders are more likely to die from flu and flu-related illnesses. The study found that 64 percent of children who died from the H1N1 virus in 2009 had been diagnosed with a condition like cerebral palsy, epilepsy or intellectual disability. In response, the CDC recommends an influenza vaccination for children with any of the above conditions. Lyn Finelli, who works for the CDC’s Influenza Division, says that the findings are a “somber reminder of the harm that flu can cause to children with neurologic and neurodevelopmental disorders.” Children with cerebral palsy face many complications in everyday life. In addition to a weakened immune system, children with cerebral palsy might have difficulty talking, moving, eating, breathing and learning. Mistakes made in the delivery process can…
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